Sixsmith, J. and Callender, M. (2013) Improving wellbeing through service design for people with long term neurological conditions. Paper presented to: 27th Conference of the European Health Psychology Society (EHPS): Well-being, Quality of Life & Caregiving, Bordeaux, France, 16-20 July 2013. (Unpublished)
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Abstract:
Background: The wellbeing of people with Long Term Neurological Conditions (PwLTNCs) was studied to help prioritise wellbeing within person-centred healthcare service design. Methods:A participatory qualitative approach explored the experiences of PwLTNCs as they transitioned through care pathways. 50 semi-structured interviews with PwLTNCs (25 re-interviewed 3 times) and 45 semi-structured interviews with service providers were conducted. Interviews focused on health, wellbeing and quality of life in relation to service provision, access and delivery. Findings: PwLTNCs reported that effective physical care was provided in hospitals but often terminated on return to the community despite on-going need. Moreover, physical health dominated professional agendas with wellbeing not often considered. In hospital/community settings, service providers indicated they lacked the support/resources to provide continuous and socially-oriented care, with PwLTNCs reaching ‘crisis point’ before referral to specialists. Conclusions: Findings show that dis-connections between services disrupt quality care and feelings of depersonalisation/disempowerment hinder the achievement of wellbeing outcomes.
Subjects:
Creators:
Sixsmith, J. and Callender, M.
Northamptonshire and East Midlands:
Health
Faculties, Divisions and Institutes:
University Faculties, Divisions and Research Centres - OLD > Research Centre > Centre for Health and Wellbeing Research
University Faculties, Divisions and Research Centres - OLD > Research Group > Social and Cultural Research in Psychology Group
University Faculties, Divisions and Research Centres - OLD > Faculty of Health & Society
University Faculties, Divisions and Research Centres - OLD > Research Centre > Institute of Health and Wellbeing
Research Centres > Centre for Health Sciences and Services
Research Centres > Centre for Psychology and Social Sciences
University Faculties, Divisions and Research Centres - OLD > Research Group > Social and Cultural Research in Psychology Group
University Faculties, Divisions and Research Centres - OLD > Faculty of Health & Society
University Faculties, Divisions and Research Centres - OLD > Research Centre > Institute of Health and Wellbeing
Research Centres > Centre for Health Sciences and Services
Research Centres > Centre for Psychology and Social Sciences
Date:
July 2013
Date Type:
Presentation
Event Title:
27th Conference of the European Health Psychology Society (EHPS): Well-being, Quality of Life & Caregiving
Event Dates:
16-20 July 2013
Event Location:
Bordeaux, France
Event Type:
Conference
Language:
English
Status:
Unpublished
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