Improving wellbeing through service design for people with long term neurological conditions

Sixsmith, J. and Callender, M. (2013) Improving wellbeing through service design for people with long term neurological conditions. Paper presented to: 27th Conference of the European Health Psychology Society (EHPS): Well-being, Quality of Life & Caregiving, Bordeaux, France, 16-20 July 2013. (Unpublished)

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Item Type:	Conference or Workshop Item (Paper)
Abstract:	Background: The wellbeing of people with Long Term Neurological Conditions (PwLTNCs) was studied to help prioritise wellbeing within person-centred healthcare service design. Methods:A participatory qualitative approach explored the experiences of PwLTNCs as they transitioned through care pathways. 50 semi-structured interviews with PwLTNCs (25 re-interviewed 3 times) and 45 semi-structured interviews with service providers were conducted. Interviews focused on health, wellbeing and quality of life in relation to service provision, access and delivery. Findings: PwLTNCs reported that effective physical care was provided in hospitals but often terminated on return to the community despite on-going need. Moreover, physical health dominated professional agendas with wellbeing not often considered. In hospital/community settings, service providers indicated they lacked the support/resources to provide continuous and socially-oriented care, with PwLTNCs reaching ‘crisis point’ before referral to specialists. Conclusions: Findings show that dis-connections between services disrupt quality care and feelings of depersonalisation/disempowerment hinder the achievement of wellbeing outcomes.
Subjects:	R Medicine > R Medicine (General) > R726.7 Health psychology R Medicine > RC Internal medicine > RC346 Neurology. Diseases of the nervous system R Medicine > RA Public aspects of medicine > RA395 Medical services. National Health Service. Private care
Creators:	Sixsmith, Judith and Callender, Matthew
Northamptonshire and East Midlands:	Health
Faculties, Divisions and Institutes:	University Faculties, Divisions and Research Centres - OLD > Research Centre > Centre for Health and Wellbeing Research University Faculties, Divisions and Research Centres - OLD > Research Group > Social and Cultural Research in Psychology Group University Faculties, Divisions and Research Centres - OLD > Faculty of Health & Society University Faculties, Divisions and Research Centres - OLD > Research Centre > Institute of Health and Wellbeing Research Centres > Centre for Health Sciences and Services Research Centres > Centre for Psychology and Social Sciences
Date:	July 2013
Date Type:	Presentation
Event Title:	27th Conference of the European Health Psychology Society (EHPS): Well-being, Quality of Life & Caregiving
Event Dates:	16-20 July 2013
Event Location:	Bordeaux, France
Event Type:	Conference
Language:	English
Status:	Unpublished
Related URLs:	Conference
URI:	http://nectar.northampton.ac.uk/id/eprint/5601

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