Journey of ethics – Conducting collaborative research with people with dementia

Schack Thoft, D., Ward, A. and Youell, J. (2021) Journey of ethics – Conducting collaborative research with people with dementia. Dementia: The International Journal of Social Research and Practice. 20(3), pp. 1005-1024. 1471-3012.

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Item Type:	Article
Abstract:	This paper explores some of the ethical considerations of working collaboratively with people with dementia within research. Examples of good practice and learning are drawn from three doctoral research studies which focus on the research relationship with participants and gatekeepers, the importance of setting and access, the power relations within the research and ways in which people with dementia can be supported to be active and have a voice in research. This sits within an ethical framework of principalist ethics, ethics of care and virtue ethics to guide not only how research is planned ethically and with consideration of participants, but also how this can support decisions made in situ. The aim is to provide learning for early career researchers going into this field of research to support their decisions in planning and conducting research with people with dementia as active collaborators.
Uncontrolled Keywords:	Dementia, Ethics, collaboration
Creators:	Schack Thoft, Diana, Ward, Alison and Youell, Jane
Faculties, Divisions and Institutes:	?? HSRES ?? Research Centres > Centre for Health Sciences and Services
Date:	1 April 2021
Date Type:	Publication
Page Range:	pp. 1005-1024
Journal or Publication Title:	Dementia: The International Journal of Social Research and Practice
Volume:	20
Number:	3
Number of Pages:	20
Language:	English
DOI:	https://doi.org/10.1177/1471301220919887
ISSN:	1471-3012
Status:	Published / Disseminated
Refereed:	Yes
Related URLs:	https://pure.northampton.ac.uk/en/public...
URI:	http://nectar.northampton.ac.uk/id/eprint/12788

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